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Jared Whitlock

A family photo shows Jacob Boggs holding his daughter Emma and standing next to his daughter Riley and his wife Courtney Boggs.

Parents Become Drug Developers to Save Their Children’s Lives

By Jared Whitlock July 21, 2022 KFF Health News Original

Families affected by ultra-rare diseases are starting their own companies to speed the development of treatments for their kids, venturing into territory that traditional drugmakers deem too risky.

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