Listen: Why Don’t You Hear More About Sickle Cell Disease?

February 7, 2018

On the national affairs radio show "1A," Marqus Valentine describes how a mild stroke went misdiagnosed when he was in elementary school. Stroke is one of many serious effects of sickle cell disease. (Jenny Gold/KHN)

Jenny Gold, a Kaiser Health News senior correspondent, joined a panel of experts and patients to discuss sickle cell disease on “1A,” the national affairs radio show hosted by Joshua Johnson. The conversation on Feb. 5 tackled how discrimination may affect the level of attention sickle cell disease receives and why only two drugs exist to treat a problem that afflicts about 100,000 Americans.

Listen to the show at the1a.org.

Gold’s earlier reporting on sickle cell disease:

Sickle Cell Patients Suffer Discrimination, Poor Care — And Shorter Lives
Sickle Cell Patients, Families And Doctors Face A ‘Fight For Everything’

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Listen: Why Don’t You Hear More About Sickle Cell Disease?

February 7, 2018

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<h1>Listen: Why Don’t You Hear More About Sickle Cell Disease?</h1>
<p>Jenny Gold, a Kaiser Health News senior correspondent, joined a panel of experts and patients to discuss sickle cell disease on “1A,” the national affairs radio show hosted by Joshua Johnson. The conversation on Feb. 5 tackled how discrimination may affect the level of attention sickle cell disease receives and why only two drugs exist to treat a problem that afflicts about 100,000 Americans.</p>
<p>Listen to the show at <a href="https://the1a.org/shows/2018-02-05/why-you-dont-hear-much-about-sickle-cell-anymore">the1a.org.</a></p>
<p>Gold’s earlier reporting on sickle cell disease:</p>
<ul>
<li><a href="https://kffhealthnews.org/news/sickle-cell-patients-suffer-discrimination-poor-care-and-shorter-lives/">Sickle Cell Patients Suffer Discrimination, Poor Care — And Shorter Lives</a></li>
<li><a href="https://kffhealthnews.org/news/sickle-cell-patients-families-and-doctors-face-a-fight-for-everything/">Sickle Cell Patients, Families And Doctors Face A ‘Fight For Everything’</a></li>
</ul>

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