Grassley Launches Inquiry Into Orphan Drugs After KHN Investigation
Citing a Kaiser Health News investigation, Senate Judiciary Committee Chairman Chuck Grassley vows to examine the orphan drug program and possible fixes.
Drug Costs
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Drugmaker Kaleo Raises Price Of Lifesaving Drug By Thousands
Kaiser Health News reporter Shefali Luthra discusses the controversy surrounding Kaleo, a company that makes a life-saving auto-injector for opioid drug overdoses on Weekend Edition.
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Drug Prices, Opioids, And Obamacare: A Conversation With Assemblyman Jim Wood
Wood, who chairs the Assembly Health Committee, lays out his priorities for 2017.
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The Orphan Drug Machine
Sky-High Prices For Orphan Drugs Slam American Families And Insurers
Orphan drugs for rare diseases have helped or saved hundreds of thousands of patients like 2-year-old Luke Whitbeck, but families and insurers are picking up the astronomical cost.
By Sarah Jane Tribble and Sydney Lupkin -
The Orphan Drug Machine
Drugmakers Manipulate Orphan Drug Rules To Create Prized Monopolies
Drugmakers have brought almost 450 orphan drugs to market and collected rich incentives but nearly a third of those products aren’t new or were repurposed multiple times, an investigation shows.
By Sarah Jane Tribble and Sydney Lupkin -
The Orphan Drug Machine
Timeline: The Orphan Drug Act
Follow the twists and turns of the orphan drug industry over the past three decades.
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The Orphan Drug Machine
Interactive: How Orphan Drugs Win The ‘Monopoly’ Game
Check out all the drugs the FDA has approved to treat rare diseases. You can search by brand name, or by disease, and see familiar names that were first sold on the mass market or all the drugs that won FDA approval to treat more than one rare disease.
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The Orphan Drug Machine
Video: Former U.S. Rep. Henry Waxman Shares Deep Concerns About Orphan Drugs
The former Congressman championed the Orphan Drug Act decades ago but now he fears it’s being manipulated to make money.
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Medicare Pays For A Kidney Transplant, But Not The Drugs To Keep It Viable
The federal government pays for kidney transplants. But the program only pays for essential anti-rejection drugs for three years. Many people can't afford them and can end up losing the kidney.
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Alleged Scheme To Fix Generic Drug Prices Started At Dinners And ‘Girls Nights Out’
Investigators claim drugmaker employees met in secret at restaurants, golf outings and at “Girls Night Out” to raise generic drug prices.
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Faced With Unaffordable Drug Prices, Tens Of Millions Buy Medicine Outside U.S.
Eight percent of those polled by the Kaiser Family Foundation say they have purchased medications outside of the U.S. to save money.
By Rachel Bluth -
In Colorado, A Low-Price Drug Cocktail Will Tamp Down Cost Of Death With Dignity
Advocates want alternatives to drugmaker's pricey pills for those who choose to die in Colorado and elsewhere.
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A Frenzy Of Lobbying On 21st Century Cures
Three lobbyists for every member of Congress in a push to pass a bill that increases research funding and speeds up approvals.
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Long-Stalled FDA Reform Sits On Senate’s Lame-Duck Calendar
The legislation would give federal officials more flexibility in evaluating the effectiveness and safety of drugs and devices and add billions of dollars to NIH funding. But critics say it could endanger patients’ safety and doesn’t do enough to stop spiraling drug prices.
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California’s Drug Price Initiative: Will Voters ‘Send A Signal To Washington’?
Despite heavy opposition from the pharmaceutical industry and skepticism from policy experts, many voters see Proposition 61 as a way to protest the nation’s mounting drug prices.
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Drug Prices, Not The Health Law, Top Voters’ Health Priorities For 2017
Majorities of Democrats, Republicans and independents support making sure high-cost drugs for chronic conditions are affordable.
By Julie Rovner -
West Virginia Grapples With High Drug Costs
Climbing drug prices are taking a toll on West Virginia's budget, some state legislators say. Expensive drugs fuel an increase in Medicaid spending, which leaves less money for schools and roads.
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7 Insurers Alleged To Use Skimpy Drug Coverage To Discourage HIV Patients
The plans sought to discourage costly HIV patients by not including their drug needs in formularies or requiring high cost sharing, a Harvard Law School group says in a complaint filed with HHS.
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Hospitals Say They’re Being Slammed By Drug Price Hikes
In a report out Tuesday, hospital groups said drug prices have skyrocketed since 2013, triggering a huge increase in what hospitals spend on pharmaceuticals.
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Tracking Who Makes Money On A Brand-Name Drug
KHN’s Julie Appleby joined forces with USA Today to create this chart, which details the various industry players and how they contribute to a prescription drug’s cost.